"JUST WHEN YOU THINK YOU HAVE LEARNED WHAT YOU NEED TO KNOW IN LIFE, SOMEONE SPECIAL COMES INTO IT AND SHOWS JUST HOW MUCH MORE THERE IS." ~unknown

Sunday, August 15, 2010

Same story, different day...

...well, I guess the one major difference in Caleb's day is that he was visited by his big brother and sister today!! He slept through the entire visit, but hopefully Ryan and Sara enjoyed being able to finally see him with their own eyes. The cardiologist did another echo cardiogram on Caleb today and said there was no change with the small pulmonary artery. That was rather disappointing since we have seen great improvement in him since he started the medicine Friday evening. Although, today he was not near as awake as he was yesterday. He slept the entire time we were there today and the nurse said he had been that way all day/evening too. They basically decided to "postpone" Caleb's surgery that was scheduled for tomorrow morning. In other words, they are not saying that he will not need it, they just did not feel it needed to be done tomorrow. So we now basically wait each day to see if he does need it or whether he can wean off the oxygen to come home. They weaned his oxygen amount from 3 liters to 2 liters while we were there, but he was not having as good a saturation levels on the 2 liters as he was the 3...so they are trying to decide whether to turn him back up to 3 liters with little oxygen flowing through it or whether to leave him at 2 liters on a high amount of oxygen flowing through. He was "desat"ing a lot while we were there once they turned it down to 2 liters, so that was frustrating. He was such a lively, different baby when I was there yesterday. Today seemed like we were right back to tired, sleeping Caleb with oxygen levels all over the place. UGH!! The delay in surgery would be nice if we knew the medicine was going to truly help him get home...not just delay the inevitable. Today just felt like we are going to spend more days going downhill for the doctors to then decide he does need the surgery. Just wish something was clear cut about all this, so we can all be home. The long trip to and from the hospital each day is starting to really wear on all of us...esp. this momma!!!

Here's hoping tomorrow is a GOOD day?! Or at least a day where some sort of plan is created.
Just trying to hold on for the day he is well enough to come home because today was one of those days where it feels like it is never going to happen. Caleb is two weeks old tomorrow. :) Crazy how the first two have flown by already!

4 comments:

  1. Continued prayers for you all. Do they know he will need this surgery eventually? If so, why don't they just go ahead and do it, if it will help him?

    Hope things improve soon!

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  3. Happy Mountains,

    I am glad your whole family was able to be there today. You are a family of wonderful faith and I am sure by that faith, strengthened with that of your extended family and friends, and sanctified by our Savior, miracles will happen.

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  4. Continued prayers. The "ups" and "downs" are hard for sure. Hopefully you will get some answers soon. Who is your cardiologist?

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