It is hard to believe that almost a week has passed since Caleb's heart surgery! Some days certainly longer then others, but so thankful that he has made such huge progress each and every day! We are basically sitting in a holding pattern now and really just need him to drink from a bottle better before he can come home. The nurse today did not think his incision culture results must have been anything serious as he was not put on an antibiotic, so she assumed the preliminary results were negative for infection. I hope to get a doctor to call me tomorrow after their rounds, as we have not spoken with one in a couple days. Another downside to the peds floor vs. an ICU floor! I hope to get a better idea from them as to what Caleb needs to be eating by bottle in order for him to be able to come home.
He did a little better today with some bottles, but not all. So it was still up and down as to how much he could handle drinking by bottle before he tires out. He certainly tires out easily, esp. when trying to coordinate the sucking/swallowing/breathing pieces of drinking from a bottle. Please continue to pray that this will all come together for him soon. We are so anxious to bring him home and care for him ourselves!!
Thanks so much,
Joanna
I would love to talk with you about what they did for Lila when she was having problems transitioning to the bottle- have they suggested a different type of bottle, one that controls the flow? That allows more time for the breathe/suck/swallowing process. If you would like, please give me a call at 571-246-3540. In the meantime, I will keep praying for Caleb!
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