Let's just say, we were truly thinking we were going to be able to bring Caleb home in a day or two...after today's visit...I now feel like it is going to be another 3 weeks. I also wish I could say that today was another holding steady kind of day...but it wasn't. When I went to see Caleb today his oxygen levels were all over the place. For some reason he has been holding steady in the low 90s since surgery, but today, he was only in the mid 80s at best and kept desat-ing into the mid-to low-70s. Very frustrating to say the least and with him being on a peds floor...well, lets just say it is hard to get the attention you feel you need in this situation. No one seemed overly concerned about it since he seemed to recover from the 'desat-ing' quickly, but it is just nerve racking to say the least to see him doing this today. We have not had any oxygen problems since they turned it off last week, so today...ugh! so frustrating! Just have NO idea why this would be occuring after many days of no oxygen problems?!
The nutrition specialist also decided today that he should be eating 60mls at every feeding, not 45 mls. I guess they base this on his age and weight, so it was decided to gradually increase his feeds this evening to 60 mls! We were having a hard enough time getting him to take all 45 mls. from the bottle, so I highly doubt he will be drinking all 60 mls. any time soon.
We pray that the doctors can easily figure out what is causing Caleb's low oxygen numbers today and hope it is a quick fix. We thought we were SO close to bringing him home...
Here's hoping tomorrow is a better day!
Joanna
Hi Joanna,
ReplyDeleteI'll be sending you my phone # to your FB. Please call me. I'm no doctor, but I've worn your shoes. I think I can help ease some of your anxiety.
I'm keeping you in my prayers. May God give you the strength and peace to continue each day.