Today was another down day in our roller coaster ride with Caleb. Just when we don't feel that his oxygen issue could get any worse...it does! Apparently this afternoon sometime, Caleb had a bad "spell" and his oxygen level got down in the 20s. They had to bump him from 1liter of oxygen flowing in his nasal tube to 3 liters! Obviously a big jump. The cardiologist still feels this is a respiratory issue and not a part of his heart condition. They feel that between his floppy airway and small nose, there are times that he is just not getting enough oxygen in, whether it is when he is irritated about something or during a deep sleep. Scary to say the least. When we feel like we are one step forward to bringing him home, we end up taking several steps backwards. The trip to and from the hospital is already making this momma very weary, esp. as I have to leave Ryan and Sara at home and never know what their days are like anymore. Then when I have to leave Caleb I feel like he sits there in his bed all alone the other 23 hours out of the day. A no win situation!
We would certainly appreciate your prayers that Caleb would grow out of his respiratory issue quickly so that he would grow more and more stable each day.
No comments:
Post a Comment