I do not even know where to find the words for a title tonight. Can't even think of one for this post. Another down day for Caleb and one where the cardiologist is now talking surgery. The cardiologist I saw today met with his colleagues this evening to decide on the best course of action for Caleb. Yes, I know I posted a couple days ago that they did not feel Caleb's increased oxygen need was heart related, but now they are thinking differently. It is not completely heart related, but one of those where his small pulmonary artery is not helping the situation either. They think it is a combination of his Down Syndrome WITH the heart condition, etc. which is causing him a serious increase in oxygen need the last 24 hours. It would certainly be nice if it was a clear cut answer as to what is causing this problem! His oxygen need today was up to 4 liters pumping through his nasal tube and when I left him at 2 pm, he was at a 100% of that - which means he is approaching the 5 liter mark. When I called the nurse this evening she said he was down to 65% on the 4 liters and that he was resting comfortably, so she is hoping he will stay that way. He is not taking anything by mouth now with this much need for oxygen so he is just being fed by his feeding tube now. Hopefully she will not need to do too many labs on him tonight and he will just sleep. He had ALOT done this morning in the way of testing just about everything to see what might be causing such an increase in oxygen need...so they are just letting him sleep ever since. We will get an answer from the cardiologist tomorrow as to the plan that was decided on...more then likely surgery to put in the shunt he needs to open his pulmonary artery. Hopefully it will greatly improve his oxygen numbers so he can come home sooner.

What an emotional day...can't imagine what tomorrow will bring...