Well, when you have two of the best pediatric heart surgeons in the area, you have to be flexible! :) We received a call this morning that Caleb's surgery needed to be moved to Wed. AM. Apparently a little one was born over the weekend that needed surgery today, so today's scheduled surgeries were bumped to tomorrow and so Caleb is bumped to Wed. We are just thankful he did not get bumped any further then that. Aunt Ginny is here from Georgia and my parents all came in today, so we are ready...well, ready as we will ever be I guess...
Thank you for checking in...we will get an update posted just as soon as we can!
By the way, I know some of you are wondering exactly what type of heart surgery Caleb is having...
He basically has two things that need fixing. Both are typical with Downs kids, but not usually both - lucky Caleb! He has the hole in the middle, so he has two chambers instead of four inside his heart so they will be making/connecting the middle of his heart so he has four chambers. This also includes making one vessel into two, also making flaps that open and close to go with them. Eek. He also has "Tetraology of Fallot" which is a narrow pulmonary vessel. The BT shunt that was put in there at 2 weeks old has provided him all this extra time to grow bigger for surgery. They will remove the shunt and enlarge the narrow vessel, which will hopefully not cause him anymore 'blueness'!! :) Obviously some very tedious work to be done...thank goodness there are very gifted surgeons to help little ones like Caleb! I think the hardest part for this momma is thinking about him being kept alive by machine for a couple hours while they work on his heart. Necessary, I know, but nerve racking none the less.
I am probably not doing the descriptions any justice, but that is about as basic of a description as I can do. :)
Until Wednesday...
Joanna
Thanks for the update, Joanna!! Praying, praying!! Will be thinking of ya'll Wed.!! :)
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