Wow - as you can probably tell by the delay in an update that Caleb is HOME! Once Caleb was transferred to the "floor" (reg. children's floor from PICU) on Day 6, everything went very quickly from there. I had to stay at the hospital the first night because Caleb was having some "junctional rhythm" issues and he was not sleeping well at all in his new room (w/a roommate!). So I felt I had to stay...one very LONG night to say the least!!! The rhythm issued seemed to be better by Day 7, so they said if everything continued to look good all that day, then we could probably go home on Thurs. (Day 8). After only 9 days since his surgery...Caleb was headed HOME! :) He was still having some PVC (premature ventricular contractions) but the cardiologist is not worried about this and is hoping they cease once his heart is more healed. Here's hoping they do! It is like a little extra blip on the heart monitor before you see the real heartbeat. Not sure if he feels them or not, but hopefully they will be going away as the heart heals. The cardiologist will be keeping a very close eye on him for the next few weeks, glad we like him so much! :) He will hook Caleb up to a 24 hour heart monitor if he feels these PVCs are not better in the next couple weeks.
Caleb has been doing well since he got home. He really tricked us by taking a 4+hour nap his first afternoon at home...he has hardly slept that much since. He is having a very hard time getting to sleep and when he does finally sleep it is not for long. I am only able to give him ibuprofen (they really only wanted me to give him Tylenol), so I am not sure how much of this restlessness is from pain or completely being overtired now or what...so we could certainly use some prayer in that area...SLEEP. He just cannot seem to find that comfortable spot to get a good sleep. Needless to say, this makes for a cranky, easily irritated little boy! Also keeping mommy on her toes...certainly not getting any downtime from his constant care. The fact we cannot pick him up from under his arms is quite a challenge too. You would be surprised how often you adjust him in your lap or pick him up from his bed, floor, etc. by his arms! A lot of scooping going on...and it isn't easy for a 19lb. 1 year-old!!!
Caleb is eating VERY well. He is eating more since he has been home then he did before surgery. His bottles are bigger and he is eating just as much food as he was before. So he is not lacking in that department!! :)
Thank you all SO much for your support in this labor intensive, exhausting journey!
Will keep you posted as much as we can at this point. He has a cardiologist check up on Thurs. so hopefully after that if he has anything special to say.
Joanna
P.S. The picture is from Caleb's last morning in the hospital...we were just starting to see a few smiles...they have been greatly missed!!! They are still hard to get, even to this day, but every now and then we are blessed with one. :)
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