Friday - Caleb was put on dialysis for the main purpose of trying to help him get this fluid off. It has built up so much in his system that he is having trouble breathing well at this point. It has built up in his belly so that his lungs are not able to take the deep in and out breaths that it needs to. We had a VERY rocky start to Caleb's dialysis as it made his heart rate low and his blood pressure really low. This also makes him very cold and his core temp was only 94 at one point. He is now under a very cozy warming blanket. His oxygen numbers all day had been a problem because of the increasing pressure on his lungs. His ventilator is set at the highest rates possible, so there is no room to go anywhere on that. He did receive some blood last night as starting dialysis obviously uses a lot through the machine at a time, so he was needing some more to compensate. It seems like once the extra blood was on board he was becoming a little more stable. So I headed home for a few hours sleep. Huge thank you to those who donate blood!!! Caleb has needed it quite a bit this week!!
Saturday - I had a very frank conversation with the Dr. this morning when I got in here. We are basically struggling with how much we are keeping Caleb alive with all these machines vs. what is still trying to save him? The Dr. basically said we are still saving him at this point, but we are certainly not far from the fine line that changes to keeping him alive. We do not want our precious boy to continue to suffer if his body is just not able to heal at any point. So we ask for your prayers that HIS will be obvious to us and the Drs. in where we need to go from here in Caleb's treatment. They are much more drastic measures they can try, but we are truly hoping this dialysis will be the answer to his problems and it will be able to get all of the excess fluid off as fast as they can. From there - everything else will be able to heal!
Psalm 107:26-30
New King James Version (NKJV)
" 26 They mount up to the heavens, They go down again to the depths; Their soul melts because of trouble. 27 They reel to and fro, and stagger like a drunken man, And are at their wits’ end. 28 Then they cry out to the LORD in their trouble, And He brings them out of their distresses. 29 He calms the storm, So that its waves are still. 30 Then they are glad because they are quiet; so He guides them to their desired haven."
Our precious boy, Caleb Andrew, blessed our lives for 414 days. We never imagined life without him and get through every day as best we can. Thank you for stopping by and reading about our journey...this is the blog we created the day our precious boy was born and his 414 day journey. Since his passing - it is about expressing feelings and putting it out there in hopes it will help someone else. You never know who you might meet along the way...
"JUST WHEN YOU THINK YOU HAVE LEARNED WHAT YOU NEED TO KNOW IN LIFE, SOMEONE SPECIAL COMES INTO IT AND SHOWS JUST HOW MUCH MORE THERE IS." ~unknown
God is able!!! Praying, praying, praying.
ReplyDelete(((HUGS)))
Our hearts are heavy at this news. We are earnestly praying for you, Caleb, and John. May the peace that passes all understanding fill your heart in these difficult days.
ReplyDelete((((HUGS)))) Thinking of you all, Joanna.
ReplyDelete