Season's Greetings!! What a different experience it has been to get ready for the Holidays this year. But on to Caleb... :)
Over the last few weeks, Caleb has been holding his head better and longer, so hopefully he will be able to start some solid foods soon! He is drinking almost 5 ounces/bottle these days and still continues to increase little by little each week. I think we are about to graduate from the small bottles soon. His most recent cardiologist appt. went well. He weighed in at 11 lbs. 13 oz. The cardiologist removed one of his medicines that he was only taking once a day and the other medicine that he took every 8 hours was reduced to a very little amount to gradually wean him off of it. As of today, he is off of it, and we will get his oxygen checked this week when he goes to the pediatrician for a check up. He can stay off of this medicine as long as his oxygen numbers are still down in the 80s and haven't jumped back up into the 90s again without this particular medicine. So now he is just on Zantac for reflux and one dose of aspirin a day to keep his shunt from developing a clot.
We certainly continue to see him improve little by little. He does have a County therapist come to work with him every other week. She has certainly seen improvement in him just in the first few times she has come. We are hoping he will not have his next heart surgery until Spring to summertime...not until his oxygen number are down into the 70s consistently. Hoping between 9-12 months of age...but it will certainly depend on Caleb and how he does between now and then.
Hope you have had a wonderful Christmas!! We are certainly thankful to have Caleb here with us and not in the hospital. We are so thankful he is off of his feeding tube and never came home with oxygen, etc. He is truly a little miracle!! :)
